Chronic Horton Neuralgy with no-response to treatment’s

I start to be really tired at this time a year. I can’t train because my attack’s take the best bunch out of me! I still do try but it is not likeable at all and makes mine pain worse.

Neck surgery at november eased some pain or made it differend and I don’t need so much astmatic medicine anymore. And the clumb they took away from my neck allows now the food and protein and stuff infiltrade to my body and my weight has come up.

It was really welcome because I weighted 60-62 kg. But who told the weight to all go around my weist and chest? 😃 Got manboobs now 🤢

Hospital said that fysical treatments and rehabilitation starts imidiadly after neck surgery.

But I’ve heard nothing about them since fysitherapeutics meeting who absolutely recommended rehabilitation.

They also throw me out from the neurology unit because they don’t have time for my kind of pation’s and they think that all is done.

Try to manage your own they said. And they didn’t even write me all the documents they promised to KELA and now I suffer from that.

I don’t understand the western Finlands healt care at all.

You need to be allmost dead and then they try to help you.

Other wise your a junkie who just wants pills and it is mind crashing to hear that kind of stuff after been suffering this desease from 2006.

And I’ve helped many people in Hortontuki as volunteer working for years in Finnish Migraine Association. And I have been first to try many dangerous medicine as a volunteer that Aki Hietaharju ja his contacts founded and searhed from around the world.

I was Europe’s first one they installed the ONS stimulator in my neck at 2008. And now it’s become one of the most used treatment for chronic horton neuralgy and here in Turku they just started new program where they install the same equipment for depression.

I miss Tampere a lot because in TAYS they treated me like a human being and I was highly respected. Here in Turku I am just a junkie and they don’t even try to listen me.

Best thing was that they said that you should read this and that… I did not told them that these puplications are made by me and Aki Hietaharju with Finnish Migraine Doctors associations help…

Where is healtcare going in western Finland?

I know the answer!

Hope you have a beautiful painless day and remember to stay cool, it’s coming a warm day!

With best regards

Pessi

Burning my self down

I was in neck injury surgery in november end. Hospital said that rehabilisation will start imidiably but nothing happened? No papers to Finnish healt association KELA as they promised. They did nothing they promised.

They trow me out from neurology’s policlinic because they can’t help me and I can survive better on my own. What the hell?

Neurosurgery’s clinic hasn’t contacted me even the control should be monthly….. No rehab for my neck even thoug they said it starts imidiadly.

So I was so angry that I started rehab my self. Dangerous as hell but what else can I do?

I trained four to six times a week. But last thursday in floorball training one guy got upset about my play and hit me with the stick to my upper stick hand and it broke.

Bab luck and an asshole guy. Wrist broken and in nerve there has allso some problem. That problem needs nerve electric test go see if its broken. But can’t do that yet because that fracture in my wrist.

Horton neuralgy pain reliefed a little bit from surgery. But still have 24/7 VAS 5-7 pain and some really bad nightly attacks but these gladly but me in sleep because of pain. K.O. is my only medicine to attack. Can’t use Imigran injection anymore.

Life is hard but who said it would be easy?

Still here, most of you daily in my mind. Hope you still stay there. Even I haven’t been writing anymore and stopped doing the Horton tuki in Finnish Migraine Association.

Love U all. Hope you manage to control your pain and life smiles back to you at time to time

Love, Pessi

Anna otsikko